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Students for Rare Clubs

Students for Rare clubs allow high school students to educate their peers and spread awareness of rare diseases throughout their school and campus. Our program unites students of all disciplines to use their skills to improve the lives of rare disease patients.

Current Clubs

  • Amador Valley High School
  • American Heritage School
  • Dublin High School
  • Henerietta Lacks Health and Bioscience High School
  • Lafayette High School
  • Mission San Jose High School
  • Mounds View High School
  • Obra D. Tompkins High School
  • Pennsylvania Leadership Charter School
  • Westfield High School



Program Details

Benefits of being in the NORD Students for Rare program include:

  • First priority consideration for scholarships to NORD’s annual Rare Disease & Orphan Product Breakthrough Summit and Living Rare, Living Stronger: Patient & Family Forum
  • Opportunities to network with other like-minded students around the country who are also interested in rare diseases
  • Opportunity to promote your major campus events and achievements on NORD’s social media channels
  • Accessing educational opportunities such as special webinars and student meetings specifically designed for students in the Students for Rare program
  • Branding your club with the NORD Students for Rare Chapter logo on your materials and social media channels

Program Details


-Host at least three campus events to promote rare disease awareness and education on campus

-Become a registered student group on campus

-Have a faculty advisor

-Have at least four student leaders

-Adhere to the NORD Club Bylaws

-Submit an annual report summarizing the activities of the previous academic year

Interest Form

NORD Student Club and Chapter Form

Student Group President

Student Group VP

Student Group Treasurer

Student Group Secretary

Student Group - Other Role

Faculty Advisor